Children with Chronic Conditions

A Pediatric Resident Curriculum on Caring for Children with Chronic Conditions

A Qualitative Analysis of Amish Families' Experiences in Caring for Medically Complex Children with Ellis-van Creveld Syndrome

“To Circ or Not to Circ” — That Is the Question for Patients With Posterior Urethral Valves

Adapting an Online-Based, Family-Centered, Peer Navigator Intervention to Facilitate Cross-Sector Systems Navigation for Low-Income, Spanish-speaking Caregivers of Children with Medical Complexity

Adults and Adolescents with High Intensity Neurologic Impairment Hospitalized at Children’s Hospitals

Blood Culture Utilization for Children with High Intensity Neurological Impairment Hospitalized for Pneumonia

Care Bundles for Patients with Intellectual and Developmental Disabilities in Pediatric Primary Care

Caregiver Emotional Well-Being Among Children With and Without Serious Neurologic Impairment: A Cross-Sectional Study

Caregiver Experiences of Discrimination in Healthcare and Pediatric Home Healthcare Access and Quality

Caregiver Perspectives on Preventing Future Hospitalizations for Children with Medical Complexity

Caring for Caregivers of Children with Medical Complexity: Implementing Support Groups in a Pediatric Complex Care Coordination Program

Characterizing Short Stay Critical Care Admissions for Children with Medical Complexity

Child Passenger Restraint System Use Patterns and Adaptive Transportation Needs in a National Cohort of Children with Complex Chronic Conditions

Children with Chronic Conditions 1

Children with Chronic Conditions 2

Children with Chronic Conditions 3

Children with Chronic Conditions Trainee Ongoing Projects

Children with Complex Chronic Conditions and Difficulties Getting to Medical Appointments by Modes of Transportation for Children with and without Medical Technology Dependence

Children with Invasive Mechanical Ventilation: Clinical Experts’ Perspectives on Neurodevelopmental Disabilities and Habilitative Needs

Co-design of a Parent-to-Parent Respite Navigation Intervention for Parents of Medically Complex Children

Construct Validation of the PediHome Measure of Pediatric Home Healthcare Quality

Cumulative Probability of Mental and Behavioral Health Diagnoses Among Mothers of Military-Connected Children with Medical Complexity

Embedding Parent Voices in Cerebral Palsy Research: The Establishment and Impact of a Parent Advisory Group

Establishing a Center of Excellence in Cerebral Palsy Care: Models of Care Delivery Within Cerebral Palsy Research Network Sites

Factors Associated with Children with Medical Complexity having Overweight or Obesity in one Complex Care Program

Factors associated with recurrent bacterial tracheostomy-associated infection hospitalizations: A multicenter, prospective cohort study

Feasibility of a Pilot Telehealth-based Pediatric ICU Follow-up (post-PICU) Program for Children with Complex Chronic Conditions and Report of Caregiver Perspectives.

From Dependence to Independence: Barriers in Pediatric-to-Adult Congenital Cardiology Transitions

Geo-Mapping Pediatric Disaster Preparedness: Identifying Gaps Among Families of Children with Special Health Care Needs

Healthcare Access, Family Stress, and Comorbidities Among US Children with Intellectual Disability: A 2016-2023 Analysis of the National Survey of Children’s Health

Identifying Children with Medical Complexity Using an Electronic Medical Record-Sourced Data Repository

Identifying Risk Factors for Outpatient Treatment Failure of Tracheostomy-Associated Respiratory Infections in Pediatric Patients: A Retrospective Study

Implementing an Inpatient Pediatric Complex Care Consult Service: The First 6 Months

Increased Psychosocial and Health risks among Children with Special Healthcare Needs

Integration of Ambulatory Care Pharmacists into a Multidisciplinary Care Team for Children with Medical Complexity

Longitudinal Family Functioning Trajectories and the Role of Caregiver Distress in Pediatric Nephrotic Syndrome

Measuring Quality of Life in Children with Medical Complexity

Nurses’ Reponses to Patient Safety Events when Caring for Children with Medical Complexity at Home

Parent-to-Parent Coaching for Parents of Children with Invasive Mechanical Ventilation: a pilot support and empowerment model

Participatory Design for Transition Readiness: Co-Creating Digital Solutions with Youth and Caregivers

Patterns of Social Vulnerability and their Associations with Care Experience and Socioecological Outcomes in Caregivers of Children with Medical Complexity

Peer-Led Parent Cafes to Enhance Resilience and Coping Among Caregivers of Children with Medical Complexity: A Qualitative Study

Quality of Life: An Important Consideration among Children with Morquio A Syndrome

Receipt of Services for Transition from Pediatric to Adult Health Care Among Youth with Chronic Conditions in the National Survey of Children’s Health (2021–2023)

Researcher Perspectives of Facilitators and Barriers to Practice-Changing Research on Children with Medical Complexity

Resilience in Caregivers of medically Complex Children: The role of shared caregiving and community belonging

Risk of Intussusception Associated with Gastrojejunostomy Tubes in Children with Medical Complexity: A Retrospective Cohort Study

Stigma and Continuity of Headache Care During Transition to Adulthood: A Qualitative Study of Young Adults and Healthcare Professionals

Tau protein in children with Down syndrome: Role in early-onset Alzheimer's Disease and neonatal physiology

The Caregivers of Medically Complex Patients’ Lived Experiences (COMPLEx) Study: Parent and caregiver perspectives on healthcare decision-making for children on long-term ventilation

The Development and Initial Validation of the Caregiver Priorities for Comorbidities & Health Evaluation Checklist (CPCHECKList©)

The Transition Care Team: A Model for Accepting Complex Pediatric Young Adult Patients into Primary Care in an Adult Health Care System

Time to Clinical Stability in Children with Medical Complexity Hospitalized with Pneumonia

Treatment of Bronchopulmonary Dysplasia (BPD): A Scoping Review of Interventional Trials

Well-Being Among Caregivers of Children with Medical Complexity in a Complex Care Program

Well-being of Children and Youth with Special Health Care Needs and Their Families