Children with Chronic Conditions

Children with Chronic Conditions 1

Children with Chronic Conditions 2

Children with Chronic Conditions 3

Children with Chronic Conditions Trainee Ongoing Projects

480 - Construct Validation of the PediHome Measure of Pediatric Home Healthcare Quality

481 - Feasibility of a Pilot Telehealth-based Pediatric ICU Follow-up (post-PICU) Program for Children with Complex Chronic Conditions and Report of Caregiver Perspectives.

482 - A Qualitative Analysis of Amish Families' Experiences in Caring for Medically Complex Children with Ellis-van Creveld Syndrome

483 - From Dependence to Independence: Barriers in Pediatric-to-Adult Congenital Cardiology Transitions

484 - Well-Being Among Caregivers of Children with Medical Complexity in a Complex Care Program

485 - Blood Culture Utilization for Children with High Intensity Neurological Impairment Hospitalized for Pneumonia

486 - Quality of Life: An Important Consideration among Children with Morquio A Syndrome

487 - Tau protein in children with Down syndrome: Role in early-onset Alzheimer's Disease and neonatal physiology

488 - Child Passenger Restraint System Use Patterns and Adaptive Transportation Needs in a National Cohort of Children with Complex Chronic Conditions

489 - Receipt of Services for Transition from Pediatric to Adult Health Care Among Youth with Chronic Conditions in the National Survey of Children’s Health (2021–2023)

490 - Stigma and Continuity of Headache Care During Transition to Adulthood: A Qualitative Study of Young Adults and Healthcare Professionals

491 - The Development and Initial Validation of the Caregiver Priorities for Comorbidities & Health Evaluation Checklist (CPCHECKList©)

492 - Longitudinal Family Functioning Trajectories and the Role of Caregiver Distress in Pediatric Nephrotic Syndrome

493 - The Transition Care Team: A Model for Accepting Complex Pediatric Young Adult Patients into Primary Care in an Adult Health Care System

494 - Adapting an Online-Based, Family-Centered, Peer Navigator Intervention to Facilitate Cross-Sector Systems Navigation for Low-Income, Spanish-speaking Caregivers of Children with Medical Complexity

495 - Researcher Perspectives of Facilitators and Barriers to Practice-Changing Research on Children with Medical Complexity

496 - Cumulative Probability of Mental and Behavioral Health Diagnoses Among Mothers of Military-Connected Children with Medical Complexity

497 - Co-design of a Parent-to-Parent Respite Navigation Intervention for Parents of Medically Complex Children

498 - Caregiver Experiences of Discrimination in Healthcare and Pediatric Home Healthcare Access and Quality

499 - Factors Associated with Children with Medical Complexity having Overweight or Obesity in one Complex Care Program

500 - Resilience in Caregivers of medically Complex Children: The role of shared caregiving and community belonging

501 - Well-being of Children and Youth with Special Health Care Needs and Their Families

502 - Peer-Led Parent Cafes to Enhance Resilience and Coping Among Caregivers of Children with Medical Complexity: A Qualitative Study

503 - Children with Invasive Mechanical Ventilation: Clinical Experts’ Perspectives on Neurodevelopmental Disabilities and Habilitative Needs

504 - Parent-to-Parent Coaching for Parents of Children with Invasive Mechanical Ventilation: a pilot support and empowerment model

505 - Embedding Parent Voices in Cerebral Palsy Research: The Establishment and Impact of a Parent Advisory Group

506 - Healthcare Access, Family Stress, and Comorbidities Among US Children with Intellectual Disability: A 2016-2023 Analysis of the National Survey of Children’s Health

507 - Time to Clinical Stability in Children with Medical Complexity Hospitalized with Pneumonia

508 - Caregiver Emotional Well-Being Among Children With and Without Serious Neurologic Impairment: A Cross-Sectional Study

509 - Integration of Ambulatory Care Pharmacists into a Multidisciplinary Care Team for Children with Medical Complexity

510 - Nurses’ Reponses to Patient Safety Events when Caring for Children with Medical Complexity at Home

511 - Identifying Children with Medical Complexity Using an Electronic Medical Record-Sourced Data Repository

512 - Caregiver Perspectives on Preventing Future Hospitalizations for Children with Medical Complexity

513 - Participatory Design for Transition Readiness: Co-Creating Digital Solutions with Youth and Caregivers

514 - Geo-Mapping Pediatric Disaster Preparedness: Identifying Gaps Among Families of Children with Special Health Care Needs

515 - Risk of Intussusception Associated with Gastrojejunostomy Tubes in Children with Medical Complexity: A Retrospective Cohort Study

516 - Treatment of Bronchopulmonary Dysplasia (BPD): A Scoping Review of Interventional Trials

517 - Adults and Adolescents with High Intensity Neurologic Impairment Hospitalized at Children’s Hospitals

518 - “To Circ or Not to Circ” — That Is the Question for Patients With Posterior Urethral Valves

519 - Care Bundles for Patients with Intellectual and Developmental Disabilities in Pediatric Primary Care

520 - Measuring Quality of Life in Children with Medical Complexity

521 - Factors associated with recurrent bacterial tracheostomy-associated infection hospitalizations: A multicenter, prospective cohort study

522 - Increased Psychosocial and Health risks among Children with Special Healthcare Needs

523 - Establishing a Center of Excellence in Cerebral Palsy Care: Models of Care Delivery Within Cerebral Palsy Research Network Sites

524 - Patterns of Social Vulnerability and their Associations with Care Experience and Socioecological Outcomes in Caregivers of Children with Medical Complexity

TOP 66 - The Caregivers of Medically Complex Patients’ Lived Experiences (COMPLEx) Study: Parent and caregiver perspectives on healthcare decision-making for children on long-term ventilation

TOP 67 - A Pediatric Resident Curriculum on Caring for Children with Chronic Conditions

TOP 68 - Identifying Risk Factors for Outpatient Treatment Failure of Tracheostomy-Associated Respiratory Infections in Pediatric Patients: A Retrospective Study

TOP 69 - Children with Complex Chronic Conditions and Difficulties Getting to Medical Appointments by Modes of Transportation for Children with and without Medical Technology Dependence

TOP 70 - Characterizing Short Stay Critical Care Admissions for Children with Medical Complexity

TOP 72 - Caring for Caregivers of Children with Medical Complexity: Implementing Support Groups in a Pediatric Complex Care Coordination Program

TOP 73 - Implementing an Inpatient Pediatric Complex Care Consult Service: The First 6 Months