A Qualitative Analysis of Amish Families' Experiences in Caring for Medically Complex Children with Ellis-van Creveld Syndrome

Mallika Kodavatiganti, Sidney Kimmel Medical College at Thomas Jefferson University, Philadelphia, PA, United States; Hannah J. Chidekel, Boston Children's Hospital, Brookline, MA, United States; Kimberly Canter, Nemours Children's Hospital, Wilmington, DE, United States; Devyani Chowdhury, University of Maryland School of Medicine, Lancaster, PA, United States; Aaron Chidekel, NemoursAlfred I. duPont Hospital for Children, Wilmington, DE, United States