Building a HIE Registry: Progress toward harmonizing clinical data and connecting clinical and caregiver-reported data for neonatal hypoxic-ischemic encephalopathy

Betsy Pilon, Hope for HIE, West Bloomfield, MI, United States; Danielle Guez-Barber, University of Colorado School of Medicine, Aurora, CO, United States; Maggie Jalowsky, Hope for HIE, Detriot, MI, United States; Zachary A. Vesoulis, Washington University School of Medicine, St. Louis, MO, United States; Eric S. Peeples, University of Nebraska Medical Center, Omaha, NE, United States; Paul H. Gross, Cerebral Palsy Research Network, Greenville, SC, United States; Joyce P. Trost, Cerebral Palsy Research Network, Greenville, SC, United States